wrote on the Regional Groups: Thames Valley ABI Forum wall: Thames Valley Brain Injury Forum Winter Hybrid Meeting - Thursday 5th December 1-3pm Dear Friends & Colleagues TVABIF continues its hybrid meetings - join us in person at RWK Goodman Solicitors, Botley, Oxford (spaces limited, book early) or online. Attendance is free but registration is essential via eventbrite. Speaker & Presentation: Evaluating ways to improve psychological care in the post-stroke pathway: The ENRICH feasibility trial Presenter: Andrea Kusec, PhD Presenter Bio: Dr Andrea Kusec is a postdoctoral researcher and NIHR DSE Fellow based at the University of Oxford in the Translational Neuropsychology Group. Her expertise is in the interrelations between cognition and mood in adults with various different types of acquired brain injuries such as stroke, traumatic brain injury, and resected brain tumours. Dr Kusec’s work uses a combination of methods, including advanced quantitative modelling, clinical trial methods, and qualitative methods to research this topic. At Oxford, she is the lead trial coordinator for ENRICH, a feasibility trial focused on providing psychological care as part of the NHS stroke care pathway. Abstract Background: Stroke is one of the most common acquired neurological conditions in the UK. National surveys through the James Lind Alliance have shown that stroke survivors top unmet needs in UK stroke care is on mood, cognition, and fatigue. Provision for psychological support after stroke, including assessment and treatment for changes in cognition, mood, and fatigue, is not routinely provided and mainly exists in specialist services. The Enhanced Reviews for Psychological Changes (ENRICH) trial, an intervention co-produced with stroke survivors, family members, and health care professionals, aims to fill this gap. Methods: The ENRICH trial is a non-randomised cluster feasibility trial. ENRICH reviews consist of cognition, mood, and fatigue assessment, structured psychoeducation and tools to communicate assessment results, and self-management strategies. ENRICH reviews will be delivered at 1, 3, and 6-months post-stroke. Health care professionals working in existing stroke services in two UK NHS Trusts in the UK will complete training on delivering ENRICH reviews, and provide qualitative feedback on the training, and their experiences delivering ENRICH. ENRICH reviews will be assessed for fidelity. Stroke patients and family members will complete questionnaires of quality of life, mood, and health care resource use at 6- and 9-months post-stroke to assess feasibility of long-term data collection, and optionally complete an interview on their perceptions of ENRICH reviews. Planned Evaluation: Recruitment and retention rates of sites and participants will be evaluated over the trial timeline. Descriptive statistics will be calculated for study measures, with rates of missingness for outcome measures at 6- and 9-months assessed. Approximately 25% of ENRICH review recordings be evaluated for adherence to the ENRICH review protocol, proportion of time spent on intervention components vs non-intervention components, and whether adherence varies across ENRICH review time periods. Discussion: The ENRICH trial is a novel investigation of whether psychological stroke care can be standardised across the UK. If found to be feasible, the trial could progress to wider-scale evaluation and pilot testing across the UK. The potential benefits of this trial would be paramount in improving care for stroke survivors and family members. Register for free here (& online joining info): https://www.eventbrite.co.uk/e/thames-valley-brain-injury-forum-winter-hybrid-meeting-tickets-1092328717599?aff=oddtdtcreator
Posted 22 November 2024

wrote on the Regional Groups: Thames Valley ABI Forum wall: Thames Valley Brain Injury Forum Autumn Hybrid Meeting - Thursday 26th September 1-3pm Dear Friends & Colleagues TVABIF continues its hybrid meetings - join us in person at RWK Goodman Solicitors, Botley, Oxford (spaces limited, book early) or online. Attendance is free but registration is essential via eventbrite. Speaker & Presentation: Diana Wong - Sexuality & Intimacy Stroke: A survivor's story. "I suffered a Stroke at 34 and since then have been in rehabilitation, learning how to be independent with half my body paralyzed. I thought stroke only affected older people...couldn't imagine how difficult it is to sit, stand up, walk or even eat after a severe brain injury. Nowadays I don't work as a journalist anymore. I became a patient advocate, board member of the first Portuguese stroke survivors organization and national coordinator of the Stroke Action Plan for Europe. Happily married, I'm a fulltime mom and had the 'privilege' to give birth to our 3rd child two years after my stroke. Such a blessing!" To reserve your free place (in person and online): https://www.eventbrite.co.uk/e/thames-valley-brain-inhury-forum-autumn-hybrid-meeting-tickets-1007659535797?aff=oddtdtcreator
Posted 04 September 2024

wrote on the Regional Groups: Thames Valley ABI Forum wall: test
Posted 04 September 2024

wrote on the Regional Groups: Thames Valley ABI Forum wall: Hi All. A reminder that this is the zoom link for tomorrow’s meeting (27/6/24, 1pm) if you would like to attend remotely. https://us02web.zoom.us/j/85699290967?pwd=SqbuXt3C5pwTXg1McuwEFMV40yobg0.1
Posted 26 June 2024

wrote on the Regional Groups: Thames Valley ABI Forum wall: Further to my last message, please register with eventbrite if you would like to attend the meeting in person (venue: RWK Goodman, Godstow Court, Minns Business Park, 5 West Way, Oxford OX2 0JB) https://www.eventbrite.co.uk/e/thames-valley-brain-injury-forum-summer-2024-hybrid-meeting-tickets-920944107617?aff=oddtdtcreator
Posted 13 June 2024