Cheyenne and Bridget Taylor successfully ran three 10k races in three days this month to raise funds for three different brain injury charities. Bridget sustained a subarachnoid haemorrhage as the result of an aneurysm last May. Fortunately she has made a fantastic recovery but in recognition of being one of only a third of people that recover from a brain injury with no long term deficit the duo decided to give something back to those who care for and support people with brain injuries.
UKABIF recently partnered with Mediaplanet UK on the 2017 Rehabilitation Campaign in The Guardian newspaper and online at http://bit.ly/2mjXKCT #Rehabilitation
In the supplement you can read motivating insight from thought leaders and learn more about the issues faced. Let’s hope this raises awareness of the need for better rehab in the UK!
The Neurological Alliance has published a new report – Parity of esteem for people affected by neurological conditions: meeting the emotional, cognitive and mental health needs of neurology patients -presenting new research examining current services. The report finds that care is characterised by disjointed patient pathways, a lack of coordination of care and patchy access to specialist neurological mental health services. This new publication also gathers together patient stories from those living with a neurological condition alongside emotional, cognitive or mental health needs and examines the impact of poor care on the individuals concerned, their families and carers and the wider impact on the NHS and the resources available. The full report is now available on their web site: http://bit.ly/MH4neuro
UKABIF has teamed up with The Neurological Alliance on calls to get the recommendations from their new report looking at the mental health needs of those with neurological conditions implemented. Parity of esteem for people affected by neurological conditions gives four headline recommendations, alongside the some actions needed to make each of them a reality:
- Clarify commissioning responsibilities for neurology and mental health
- Standardise NICE guidance relating to neurological conditions to address emotional, cognitive and mental health needs
- Invest in specialists and specialist training
- Improve access to information, care planning and coordination of care for neurology patients
A man with brain injuries who took his own life did not receive proper support from health and social care services, a serious case review has found.
Forty-three-year-old Tom, who had sustained a brain injury in a car crash more than 20 years previously, was discovered dead at his Somerset home in June 2014. Since his accident he developed longstanding mobility, mental health and substance misuse problems. More recently he had been financially exploited.
Although Tom’s family requested help on numerous occasions the SCR notes that services consistently failed to take into account or assess his mental capacity, were not integrated and that no one took overall responsibility.
The full review can be found by following this link
Her Majesty’s Prison and Probation Service (HMPPS) recently announced four new funds designed to encourage voluntary organisations ‘to pilot, develop and test to provide a proof of concept’ in different areas. In this round the funds are looking at violence amongst young black, Asian and minority ethnic (BAME) people in prison as well as resettlement for BAME people back into the community, services for people with learning disabilities and autism, and better understanding the needs of people with Acquired Brain Injury or Traumatic Brain Injury.
HMPPS are looking at a project which will develop understanding and meet the needs of individuals with Acquired Brain Injury (ABI) or Traumatic Brain Injury (TBI) in English and Welsh male prisons and Welsh approved premises A grant of £203,000 is available – link to Contracts Finder. The closing date is 8th June.
“Navigating the future for brain injury survivors: health, rehabilitation and beyond”
10.00 Welcome from the Chair – Professor Mike Barnes
10.15 – 11.00 Cognitive enhancers and functional MRI in traumatic brain injury
Emmanuel A Stamatakis PhD
Division of Anaesthesia, University Of Cambridge, Addenbrooke’s Hospital Cambridge
11.00 – 11.45 Using Technology to Monitor Rehabilitation
Professor Helen Dawes.
Elizabeth Casson, Trust Chair, Deputy Director, Oxford Institute of Nursing, Midwifery & Allied Health Research (OxINAHR)
Movement Science Group, Faculty of Health and Life Sciences, Oxford Brookes University
Associate Research Fellow, Department of Clinical Neurology, University of Oxford
Honorary Professor, Cardiff University
Sent on behalf of the Diagnosis/Prognosis subgroup of the Disorders of Consciousness Special Interest Group of the International Brain Injury Association.
The IBIA Disorders of Consciousness Special Interest Group (DoC SIG), together with the International Paediatric Brain Injury Society (IPBIS), would like to invite you to participate in the “International survey on diagnostic and prognostic procedures in pediatric patients with disorders of consciousness”. The survey aims to explore the diagnostic and prognostic indices routinely used by pediatric specialists and their teams to assess infants, children and adolescents with disorders of consciousness (DoC) in different countries as well as regional guidelines for same. Please participate in this survey ONLY if you are involved in the care and treatment of paediatric patients (18 years or younger) with DoC secondary to acquired brain injury.
A new report published by healthcare intelligence provider, Wilmington Healthcare and UKABIF shows that many hospital admissions in England for traumatic brain injury are for people over the age of 75.
The report which is based on English Hospital Episode Statistics (HES) data found that 40% of hospital admissions in 2014/5 for TBI were for people aged over 75.
When classified via age groups, the data showed there were 8,999 hospital admissions for TBI for people aged over 75 in 2014/15, compared to 13,387 for all other age groups from under 15 to 65-74 in the same time period.
The report recommends that the DoLS should be replaced with a new scheme – which called the Liberty Protection Safeguards.
The final report (which includes the draft Bill), as well as the other project documents, can be found at www.lawcom.gov.uk/project/mental-capacity-and-deprivation-of-liberty/.
The report and draft Bill will now be considered by Government.
A new report has been produced for frontline staff with information to support people experiencing homelessness who are known or are suspected to have experienced brain injury. There is information about what brain injury is, how it is caused and why people who experience homelessness may be at risk. Most importantly there is information on how to support people with, or suspected to have, brain injury and how to access specialist services. If you are in a rush and need to know what to do right now, there is also a quick checklist.
For more information go to Homeless Link website.