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International Survey on Diagnostic & Prognostic Procedures in Pediatric Patients with DOC

Sent on behalf of the Diagnosis/Prognosis subgroup of the Disorders of Consciousness Special Interest Group of the International Brain Injury Association.

The IBIA Disorders of Consciousness Special Interest Group (DoC SIG), together with the International Paediatric Brain Injury Society (IPBIS), would like to invite you to participate in the “International survey on diagnostic and prognostic procedures in pediatric patients with disorders of consciousness”. The survey aims to explore the diagnostic and prognostic indices routinely used by pediatric specialists and their teams to assess infants, children and adolescents with disorders of consciousness (DoC) in different countries as well as regional guidelines for same. Please participate in this survey ONLY if you are involved in the care and treatment of paediatric patients (18 years or younger) with DoC secondary to acquired brain injury.

The survey should take about 15 minutes to complete. Please note you must complete the survey all at one time as you will not be able to come back and edit your responses once started or completed. You will receive more specific information as soon as you open the survey. It is possible to skip parts of the survey that are not applicable to your practice.

Click here for the survey or visit https://www.surveymonkey.com/r/8C82LVC

Please complete the survey by April 20th as we would like to present the results at the Second International Conference on Paediatric Acquired Brain Injury that will be held in Rome, Italy in September 2017. If you have already participated in this survey, please disregard this request.

We would very much appreciate your participation in this survey and thank you in advance for your time. Please help us advance the knowledge in pediatric DoC care worldwide.
Thank you very much in advance for your participation.

New Report Shows Traumatic Brain Injury is a Major Threat to Older People

A new report published by healthcare intelligence provider, Wilmington Healthcare and UKABIF shows that many hospital admissions in England for traumatic brain injury are for people over the age of 75.

The report which is based on English Hospital Episode Statistics (HES) data found that 40% of hospital admissions in 2014/5 for TBI were for people aged over 75.

When classified via age groups, the data showed there were 8,999 hospital admissions for TBI for people aged over 75 in 2014/15, compared to 13,387 for all other age groups from under 15 to 65-74 in the same time period.

The report found that there had been a 39 percent rise in the total number of hospital admissions for TBI during a six-year period from 2009/10 to 2014/15, although these figures may be attributed to improved identification. This study did not examine all Acquired Brain Injuries data in HES, so it is likely that the actual figures for TBI are likely to be even higher, given differences in recording.

Dr Andy Eynon, Consultant in Neurosciences Intensive Care, Wessex Neurological Centre, said: “Major trauma networks went live in London in 2010 and nationally in 2012. Now they are in place we have greatly improved the identification of and care for all patients sustaining major trauma. This includes better recognition of the mechanisms that cause major trauma in the older person, the commonest of which is a fall from standing.

“We still need to improve the pathways of care for the elderly to ensure injuries are identified quickly and managed appropriately, including greater involvement of geriatricians and access to rehabilitation.”

Four of the top five listed causes of TBI in 2014/2015 across all ages were falls, including on or from stairs and steps, and falls on the same level from slipping, tripping and stumbling. In fact, ‘any type of fall’ was listed alongside 54.8 percent of admissions.

The fifth top cause of TBI, which is classified by the NHS as an Acquired Brain Injury (ABI) was ‘assault by bodily force’.

Professor Mike Barnes, Chair, UKABIF, which promotes understanding of all aspects of Acquired Brain Injury and provides expert advice to UK policy makers, said: “We need to increase awareness and understanding of ABI and its life-long impact on individuals and their families and carers.

“We need to improve service provision for people with all types of ABI on discharge from acute care, and for their long-term care and support by ensuring they have a rehabilitation prescription which is actioned and monitored. Having a named lead in each CCG responsible for ABI and rehabilitation services is also key.”

Sue Thomas, CEO of Commissioning Excellence, Wilmington Healthcare, said:

“This report shows that every year thousands of people in England suffer a traumatic brain injury and have to live with the long-term physical, cognitive, educational and psychosocial consequences associated with it.

“Many incidences of TBI are caused by trips and falls, particularly among older people. Raising awareness within primary care of these issues may help to tackle the problem by encouraging a more preventative focus in frailty strategies for our ageing population.”

NHiS ABI Report 

This infographic illustrates the key points of the report -ABI-Infographic

Brain Injury and Homelessness: Good practice guidance for frontline services

A new report has been produced for frontline staff with information to support people experiencing homelessness who are known or are suspected to have experienced brain injury. There is information about what brain injury is, how it is caused and why people who experience homelessness may be at risk. Most importantly there is information on how to support people with, or suspected to have, brain injury and how to access specialist services. If you are in a rush and need to know what to do right now, there is also a quick checklist.

Please click this link to access the full document as a pdf.

For more information go to Homeless Link website.



New Publication: NR Times

We are really delighted to be associated with a new publication called NR Times. This is a new quarterly magazine for brain and spinal injury specialists of all professions. It aims to keep readers up to date with research, developments and advancements. If you did not receive a copy and would like one please email your address to info@ukabif.org.uk

From BMX to brain injury: how a single punch changed a life forever

This short film explores the story of Jamie McKechnie, who was punched in an unprovoked street attack in Shortlands, south-east London, in 2011. The film was made as part of a Channel 4 documentary, One Killer Punch, which explores the dramatic repercussions of a single act of violence


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Royal Society of Medicine hosts UKABIF’s 8th Annual Conference

‘From Surviving to Thriving with Acquired Brain Injury’ was the theme of UKABIF’s Annual Conference, held at the Royal Society of Medicine in London last week.

Advances in the treatment of brain injury over the past decade have resulted in increased survival, but there are long-term consequences for survivors. Speakers at this year’s Conference looked the rehabilitation challenges following the re-organisation of trauma care, the status of predicting outcomes, and discussed new approaches to rehabilitation management.

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UKABIF Awards 2016

This year’s Awards were announced at the UKABIF Conference which took place in London on 14th November 2016.

The United Kingdom Acquired Brain Injury Forum (UKABIF) Clinician of the Year is Keira Stevenson, an Occupational Therapist (OT) who works at Woodlands, Christchurch Group in York.

Keira’s patients are recovering from brain injuries and neurological conditions, including stroke, and she ensures that they get the therapies they need to increase their own independence. She has developed innovative strategies for those living with fatigue following a brain injury, and she recently qualified in Dance Movement Psychotherapy (DMP), a creative process used only by a handful of trained therapists in the UK. Keira uses DMP, which involves movement of the body as an expressive instrument of a person’s communication, feelings and thoughts, so that participants can communicate in their own instinctive way. DMP is particularly useful where verbal communication is an issue.

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UKABIF Film Award Winners Announced

The winners of the first UKABIF Film Award were announced at UKABIF’s Annual Conference on Monday 14th November. There were two runners up, Jeremiah Humphreys-Piercy for his film ‘Not Your Common Girl’. This film is about Esme, she is is not your common girl – she has acquired brain injury and after prompting from her friend Riley she decides to start a YouTube Channel to raise awareness, share her story and help people understand the effects of the injury she refuses to let define her.  https://www.youtube.com/watch?v=RlmQNRhC9aI&list=PLMmtHoTsbABb6UY4agNI3_v1bPOz2KcZA&index=7

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UKABIF welcomes enquiries from the media. We are able to provide information about all aspects of acquired brain injury as well as experts in the field to talk about topical issues. Please call 0845 6080788 or 07903887655.