This is a new book in the Psychology Press series, ‘After Brain Injury: Survivor Stories’ edited by Barbara Wilson. Life After Encephalitis starts with a chapter about what encephalitis is and what it does. It then moves on to explaining the history and the value of using narratives in medicine in placing the patient in a central role in their healthcare. The remaining chapters explore the effect of encephalitis on the survivors themselves and members of their family. Ava makes the hard science of encephalitis accessible for all readers. The personal stories convey the trauma of the illness and the struggle of dealing with on-going health issues and authorities for continued support. Well worth a read whether you are a clinician, carer, someone who has suffered from encephalitis or just interested in how people deal with devastating illness.
Acquired brain injury (ABI) not only has an impact on the survivor, but also on the partner and personal relationships as a whole. The present study aimed to investigate the male partner experience of living with a female with an ABI; exploring role change, intimacy and future expectations. Semi-structured interviews were conducted with six male partners of ﬁve females with a subarachnoid haemorrhage and one female with a traumatic brain injury. Interviews were transcribed verbatim and analysed in depth using Interpretative Phenomenological Analysis (IPA). Continue reading
Does your spouse/partner have an Acquired Brain Injury?
Do you act as their main caregiver as the result of their brain injury?
Would you be willing to talk about your experiences?
If the answer to these questions is yes, you are warmly invited to contact Ben Lond- a postgraduate research student at De Montfort University (contact details below) – to find out more about a research study looking at the experiences of caregivers who support their spouse/partner with acquired brain injury.
An interesting article was published recently in the New York Times which considers the neuropathology of blast injury. In the US various parties are looking at the physical differences in the brains of those who have experienced blast injury to explain the cognitive issues which result. Post Traumatic Stress Disorder or Shell Shock, was previously viewed as purely psychological. The resulting problems range from memory issues to depression and sadly sometimes result in suicide. The new research is an enormous step forward indicating evidence for what was previously viewed as a ‘lack of manly vigour and patriotic spirit’.
To mark Brain Awareness Week (14-20 March 2016) the United Kingdom Acquired Brain Injury Forum (UKABIF) has launched a Short Film Award to raise awareness of Acquired Brain Injury.
“We want to see a short, innovative, informative and ‘must-see’ film that best narrates the impact of Acquired Brain Injury” said Professor Michael Barnes, UKABIF Chair. The UKABIF Short Film Award will acknowledge, recognise and reward a film that can inspire and educate all target audiences about brain injury and its impact.